We are so grateful for YOU!
And YOU jumped right in and HELPED.
For the last 10 years we have met so many wonderfully generous people on this journey of spreading awareness, sharing stories and raising funds for a CURE for CF. I think I can speak for all of the CF families in expressing the love and gratitude we have for our growing CF community of friends and supporters.
Since Colleen’s Run for Roses, we have 4 FDA-approved therapies and more than 25 potential new meds in the pipeline! Researchers are working to find a drug for the remaining (less than 10%) CF population who do not have a treatment as yet. In just the past 2 years during the pandemic:
*Trikafta was approved for 6 – 11 year-olds
*15% of those with CF required hospitalization during COVID
*17% of adults with CF required IV antibiotics, down from 40% over the past decade *pregnancies tripled in women
The CFF Path to a Cure recently announced the First-of-Its-Kind Deal, to collaborate with Pioneering Medicines, an initiative of Flagship Pioneering and to invest up to $100 million to accelerate the development of genetic-based therapies for CF.