HAPPY NEW YEAR!
In January 2018, Katie and two of her special college friends supported each other throughout their training and the 26.2 miles of the Disney Full Marathon to get to the FINISH LINE! I am constantly reminded by this photo of the importance of SUPPORT in attacking and completing any challenge we choose to face.
All of you are so important in filling this role for each and every CF person. Today, Katie and so many others are able to discontinue several of their daily meds because of one amazing drug, Trikafta, which was approved by the FDA in October 2019! This is HUGE progress. And you are part of helping all those living with CF live a healthier life through he medical breakthroughs that are the product of each dollar raised. The Cystic Fibrosis Foundation is putting more funds each year into not only new services, treatments and medications, but also into research in gene therapy and finally a cure for CF!!!
Many of you have already reached out to us as sponsors, donors and volunteers for our biggest fundraiser of the year: Run for Roses Trivia Night / Silent Auction on April 22. If you are able to donate any raffle or auction items, become a sponsor, volunteer or register a table of 8 for trivia, please call or text Linda at 314-952-7944. Your support will get us to the FINISH LINE!
WE Won’t STOP ‘TIL IT’S DONE!
*****MARK YOUR CALENDARS for Saturday, April 22, 2023 to attend our Run for Roses Trivia Night & Silent Auction!
*****Read below: CF Advocacy
As always, please keep following us on Facebook and sharing our information and our newsletters with your family and friends.
We are grateful for your support! Donations can be made via link: Great Strides, VENMO: THEROSEFOUNDATION-CF or DONATE button on our Facebook. Every dollar gets us closer to the Finish Line!
As always, the Caul Family and The Rose Foundation Board are so thankful for all you do to help us spread awareness and raise funds for a cure!
Sláinte,
Linda & all the Cauls