THANK YOU & GREAT STRIDES WALK!
Thanks to all of our family and friends who are attended our Trivia Night / Silent Auction on Saturday, April 22! Together you raised $21,844 for research for a CURE! Congrats to Peggy Taylor who won the Balloon Raffle!! Thank you to all of our amazing trivia, raffle and auction participants; sponsors and donors; board members; volunteers and so many others who spread awareness and reach out to our community for more support! We are on the PATH TO A CURE and we can not do it without all of YOU!
Here is how your dollars are working for those with CF:
*Trikafta Approved for Children Ages 2 Through 5 Years With Certain CF Mutations
*CF Foundation Commits Up to $15.5M in Additional Funding for Potential Enzyme Therapy –clinical trials with a novel enzyme that, if successful, would decrease enzymes before each meal from handfuls to only one pill!
*CFF investments in three companies that are conducting lab research on different ways to deliver genetic therapies to the lung cells of people with CF. (Genetic therapies which will provide cells with the correct instructions for making the cystic fibrosis transmembrane conductance regulator (CFTR) protein)
- Up to $15 million to ReCode Therapeutics to further develop a unique, selective organ-targeting lipid nanoparticle to deliver healthy messenger RNA (mRNA) to lung cells.
- Up to $3.5 million to Gensaic to explore how to engineer bacteriophage or phage — specialized viruses that typically target bacteria — to deliver a healthy CFTR gene to lung cells.
- Up to $2 million to Nanite Inc. to study the development of polymer nanoparticles — novel delivery vehicles that can be programmed to target lung cells and resist the thick, sticky mucus that clogs the lungs of people with CF. The nanoparticles would initially be used to deliver mRNA therapy.
WE Won’t STOP ‘TIL IT’S DONE!
SAVE These Dates:
*****Register for our Team Run for Roses and come to the CFF GREAT STRIDES WALK in Fenton Park, Saturday, May 20
*****CARDINAL Baseball Tickets Raffle for August 29 against the Padres: Sec 148 Row 24 Seats 15, 16, 17 & 18.
*****CARDINAL Baseball Tickets Raffle for September 19 game against the Brewers: Sec 148, Row 20, Seats 13, 14, 15 & 16
*****CFF Libations at the Station, Saturday, September 30, 6pm, St. Louis Union Station
As always, please keep following us on Facebook and sharing our information and our newsletters with your family and friends.
We are grateful for your support! Donations can be made via link: Great Strides, VENMO: THEROSEFOUNDATION-CF or DONATE button on our Facebook. Every dollar gets us closer to the Finish Line!
As always, the Caul Family and The Rose Foundation Board are so thankful for all you do to help us spread awareness and raise funds for a cure!
Sláinte,
Linda & all the Cauls