GRATEFUL FOR YOU!!
As we begin our holiday season of THANKS, all of us at The Rose Foundation thank all of you for your participation, support, donations and help to push us towards a Cure for CF! Jeff and I , along with every other parent wish and dream for the same thing, our children to grow up and live a healthy and happy life. This is why we can’t stop. We are so blessed to have all of you walking alongside us to make this happen for Katie and all those living with CF. As you look into your own child’s eyes, know we are there for you as well. Dream and work with us as we continue following a belief that Impossible things are happening every day!
Results from the six-week Simplify study are showing the possibility to eliminate the use of one or two common CF drugs in some patients who demonstrate good lung functioning. “The CFF Path to a Cure supports preclinical research into an innovative gene therapy approach that could temporarily “fix” CF in the lungs. Carbon Biosciences aims to deliver a functional cystic fibrosis transmembrane conductance regulator (CFTR) gene directly into the lung cells of people with CF using a novel viral delivery method. This healthy gene could enable the expression of a functional CFTR protein in essentially all individuals with CF, regardless of their mutation. To learn more about genetic therapies and upcoming clinical trials, watch the recording of the closing keynote from ResearchCon 2022, “Something for Everyone: A look at possibilities and challenges of genetic therapies on the horizon.”
We deeply appreciate you spreading awareness and bringing your friends and family to our events. We thank those of you who fill out the paperwork to double your donations through MATCHING GIFTS program at you business. Every dollar raised and every new person joining our team pushes us to the
FINISH LINE!
We won’t stop ’til it’s DONE!
*****MARK YOUR CALENDARS for Saturday, April 22, 2023 to attend our Run for Roses Trivia Night & Silent Auction!
Please keep following us on Facebook and sharing our information and our newsletters with your family and friends. We absolutely need all of YOU to get us to the CURE for CF!!
As always, the Caul Family and The Rose Foundation Board are so appreciative for all you do to help us spread awareness and raise funds for a cure!
Sláinte,
Linda & all the Cauls